Hi All,
Jaxon has been doing really well at school, all his teachers say how happy he is and how he always tries his best at everything.
We are so proud of how far he has come.
Thank you to all that joined us for the Nike Marathon this year, Jaxon really enjoyed the day.
Jaxon celebrated his 7th Birthday in October.
Happy Birthday Jaxon!
Unfortunately Jaxon is still suffering seizures most nights, we are still waiting to hear from his medical team regarding the trial of the new medication which is taking longer than they hoped. Once we know more about this medication and the side effects Matt and I will make the decision if we trial this new medication or not. Jaxon had a long seizure in November resulting in paralysis on the left side of his face. It was a scary moment for Matt and I as we have never seen this happen before. We called an ambulance, and he was taken to hospital for further testing. They ruled out stroke not long after Jaxon was admitted. Jaxon had a condition called Todd’s paresis which is a temporary weakness or paralysis after a seizure. In true Jaxon form he had all the paramedics and nurses laughing with his wicked sense of humour.
Jaxon has been doing well in his Physio sessions. We received some new AFOs this year which offer more support for him. He has been doing such an amazing job at independent standing which has blown us away. See video below of Jaxon standing all by himself which he has never done for more than a few seconds!
Wishing everyone a very Merry Christmas and a Happy New Year.
Thank you all for your ongoing support and love for Jaxon.
See you all in 2025!
Update from the Foss
JAXONS JOURNEY FUNDRAISER’S
EVENTS FOR 2025
Jaxon's Journey Barbeque
To be held at APM Group Project at Croydon Aged Care Friday the 13th, December 2024 (lucky for some unlucky for others). Good luck Luch and Rick. All monies raised will go to the JJ Trust fund.
Sunset Series
The APM Group team fun run for the Sunset Series will commence early next year and we would also like to take the opportunity to raise funds for Jaxon.
As per previous years, you can do 4kms or 8kms and run or walk. The series runs fortnightly over 3 Wednesdays from 5th February 2025, generally from 6pm-8pm.
Jaxon will be participating in the Melbourne Zoo walk so for everyone in this race to donate the registration fee of $63 (and above if you wish) to sponsor Jaxon.
f you’re not up for the race but would like to donate in support of Jaxon, please get in touch with Belinda or Holly at Headquarters.
APM Group is happy to again cover the registration cost if you participate in all 3 races.
Wednesday 5th February: Melbourne Zoo - 4.7km or 7.7km
Wednesday 19th February: Princes Park - 4km or 8km
Wednesday 5th March: The Tan - 4km or 8km
Standard registration ends on Thursday 16th January so if you could please get back to me by COB on Tuesday 14th January with which races you are running (including distance) so that we can organise all registrations that would be great.
Bunnings Barbeque
Thanks to Trust member MG’s contact we can now announce that on Saturday January 25th,2025, the trust will operate a Bunnings Barbeque at their Hawthorn store. We look forward to making a success of this event in 2025 and future years on this day.
Rhino Bins Fundraiser
Sean at Rhino Bins who has been a staunch supporter of JJ is now going to deliver to each APM Group project a metal bin ( stencilled with a JJ logo ) to be filled up with all recyclable steel and metals from the site. All proceeds will go to the JJ Trust.
We thank Sean for his continued support of the trust.
Jaxon’s Journey Trivia Night
After the huge success of last year, the committee has decided to once again to organise another Trivia Night. Details to follow of the event- July 2025
DISABILITY TRUST FUND
Nothing to report
JAXONS JOURNEY WEBSITE
DONATIONS ARE GOING OK AT THE MOMENT- SLOW AND STEADY CAPTAIN KIRK SAID. PLEASE LET YOUR FRIENDS AND FAMILIES KNOW OF THE WEBSITE MAKE A DONATIONS TO A WORTHWHILE CAUSE.
PURCHASING OF MERCHANDISE IS NOW AVAILABLE THROUGH JAXON’S JOURNEY WEBSITE.
TRUSTEES MEETING
Trustees meeting held on Wednesday 12 November 2024 at Headquarters.
Main issues discussed were future fundraising activities for 2025, including upcoming Site barbeques, Sunset Series Walk/Run, Bunnings Barbeque and Trivia Night.
Next meeting due Wednesday 5th February 2025 at Headquarters.
Merchandise- To all APM Group people can we make a concerted effort to try and sell all current merchandise available on sites. T Shirts are now available on all APM Group projects.
Vending machines are on all sites. Sales depend on the number of workers at any one time. Once again, another form of fundraising which is creating regular ongoing income for the Trust.
CURRENT FUNDRAISING
NEW INITIATIVES
Recent Cashies for Jaxon’s Journey
Thanks to the initiative from Matt Dole the trust now has another Cashie.
One of APM Groups clients Summerset Oakleigh South have asked the trust to clean up a vacant block of land in South Oakleigh. This task will be completed on Monday the 23rd of December 2024. We thank Summerset for their participation in this fundraiser.
If anyone knows of someone who needs some work done contact MG/Foss/MM.
Looking forward to continuing to maintain all our support to both Lauren, Jaxon, and Lantern.
KEEP UP THE GOOD WORK
IF ANYONE HAS ANY NEW FUNDRAISING IDEAS PLEASE CONTACT
B, LUC, LANTERN, DELILAH, ECTOMORPH OR FOSS.
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